Jacob Redmond
Well-Known Member
Carrie Akins received a letter in the mail recently stating her daughter Avery had been "approved/recommended" by the University of Alabama at Birmingham CBD Treatment Approval Committee members to take part in the college's trial that would use marijuana-derived medicine to treat seizures.
However, the message continued to say "this letter does not guarantee" that the 8-year-old Foley Elementary School student with Rett Syndrome will be enrolled in the study.
On March 3 UAB received federal permission to begin the research trial that uses CBD oil, a marijuana-derived cannabidiol. On March 4 a packet with Avery's information was sent to UAB in hopes she would qualify for the study and be accepted.
Dustin Chandler was the driving force behind the Carly's Law legislation signed in April that authorized studies of marijuana-derived cannabidiol at UAB. The legislation came through after a push by Chandler, with the law named after his special-needs daughter he has with wife Amy.
Friday he explained to AL.com that those who receive a letter saying they're recommended for the study are not guaranteed a spot in the study.
However, if a patient's packet of information was sent within the cutoff number of patients allotted for the study, and that patient received a letter that they've been recommended for the study, they're likely to get accepted.
According to Chandler, those who don't receive the letter stating they're recommended for the study will receive a rejection letter.
The study accepts 50 adults and 50 children. UAB's Bob Shepard said Thursday that three adults and three children have been formally enrolled in the study. The trial is expected to have 10 patients by the end of the month.
About 350 packets of information where mailed to prospective patients, however Chandler said a couple of weeks ago only about 120 packets of information had been received by the college to be reviewed for recommendation.
"It's my belief there are people out there thinking if you're 101 or 102 you're left out in the cold and nobody cares about you. I think that couldn't be farther from the truth," Chandler said.
He hopes that if supply of the oil runs dry and there are people qualified for the study, the Alabama legislature will take a close look at the issue.
The UAB study is said to be the largest open-access study in the United States. Two studies are conducted, one with 50 adults and one with 50 children. Patients orally receive the oil, and researchers will assess the safety of the drug and the tolerance of its users.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: Patients on waiting list for Carly's Law study told they're approved, not guaranteed to participate | AL.com
Author: Emily Hill
Contact: ehill@al.com
Photo Credit: None Found
Website: Alabama Local News, Breaking News, Sports & Weather - AL.com
However, the message continued to say "this letter does not guarantee" that the 8-year-old Foley Elementary School student with Rett Syndrome will be enrolled in the study.
On March 3 UAB received federal permission to begin the research trial that uses CBD oil, a marijuana-derived cannabidiol. On March 4 a packet with Avery's information was sent to UAB in hopes she would qualify for the study and be accepted.
Dustin Chandler was the driving force behind the Carly's Law legislation signed in April that authorized studies of marijuana-derived cannabidiol at UAB. The legislation came through after a push by Chandler, with the law named after his special-needs daughter he has with wife Amy.
Friday he explained to AL.com that those who receive a letter saying they're recommended for the study are not guaranteed a spot in the study.
However, if a patient's packet of information was sent within the cutoff number of patients allotted for the study, and that patient received a letter that they've been recommended for the study, they're likely to get accepted.
According to Chandler, those who don't receive the letter stating they're recommended for the study will receive a rejection letter.
The study accepts 50 adults and 50 children. UAB's Bob Shepard said Thursday that three adults and three children have been formally enrolled in the study. The trial is expected to have 10 patients by the end of the month.
About 350 packets of information where mailed to prospective patients, however Chandler said a couple of weeks ago only about 120 packets of information had been received by the college to be reviewed for recommendation.
"It's my belief there are people out there thinking if you're 101 or 102 you're left out in the cold and nobody cares about you. I think that couldn't be farther from the truth," Chandler said.
He hopes that if supply of the oil runs dry and there are people qualified for the study, the Alabama legislature will take a close look at the issue.
The UAB study is said to be the largest open-access study in the United States. Two studies are conducted, one with 50 adults and one with 50 children. Patients orally receive the oil, and researchers will assess the safety of the drug and the tolerance of its users.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: Patients on waiting list for Carly's Law study told they're approved, not guaranteed to participate | AL.com
Author: Emily Hill
Contact: ehill@al.com
Photo Credit: None Found
Website: Alabama Local News, Breaking News, Sports & Weather - AL.com
