Jacob Redmond
Well-Known Member
Every day, Rozanne Burley lives a reality her teenage son Adam could suddenly pass away.
The 14-year-old Regents Park boy was diagnosed with Dravet Syndrome when he was seven.
It causes uncontrolled seizures, development delays and regression.
"Adam was given various medications to try and control his seizures," Mr Burley said.
"(But) a seizure could claim his life anytime. Dravet Syndrome doesn't have any cure for it at present."
Two years ago Ms Burley decided to try medicinal marijuana, out of what she said was desperation.
"Within a month he became more responsive, calmer and happier and stared to eat again It had a huge improvement in his quality of life," she said.
However, she said after she feared being reprimanded by police, she took him off it, and since then, has continued to fight for the testing and legalisation of the drug.
"When we have tried everything else and nothing works, myself and other parents should be allowed to have our children on this," she said.
Ms Burley said she would continue to push for the testing after she read Waterford teen Lindsay Carter's similar battle in the Albert & Logan News earlier this year.
"If it is legalised, testing need to be done," Ms Burley said.
Queensland Health chief health executive Dr Jeanette Young recently told the Albert & Logan News "much more work needs to be done to determine clinical effectiveness before endorsing the release of these products in a regulated way".
Earlier this month the Medical Cannabis Advisory Group of Queensland presented more than 3700 signatures in a petition to State Parliament asking for the immediate introduction of a Cannabis for Medical Purposes Bill.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: No Cookies | The Courier-Mail
Author: Aleisha Pidgeon
Contact: editorial@qst.newsltd.com.au
Photo Credit: Josh Woning
Website: No Cookies | The Courier-Mail
The 14-year-old Regents Park boy was diagnosed with Dravet Syndrome when he was seven.
It causes uncontrolled seizures, development delays and regression.
"Adam was given various medications to try and control his seizures," Mr Burley said.
"(But) a seizure could claim his life anytime. Dravet Syndrome doesn't have any cure for it at present."
Two years ago Ms Burley decided to try medicinal marijuana, out of what she said was desperation.
"Within a month he became more responsive, calmer and happier and stared to eat again It had a huge improvement in his quality of life," she said.
However, she said after she feared being reprimanded by police, she took him off it, and since then, has continued to fight for the testing and legalisation of the drug.
"When we have tried everything else and nothing works, myself and other parents should be allowed to have our children on this," she said.
Ms Burley said she would continue to push for the testing after she read Waterford teen Lindsay Carter's similar battle in the Albert & Logan News earlier this year.
"If it is legalised, testing need to be done," Ms Burley said.
Queensland Health chief health executive Dr Jeanette Young recently told the Albert & Logan News "much more work needs to be done to determine clinical effectiveness before endorsing the release of these products in a regulated way".
Earlier this month the Medical Cannabis Advisory Group of Queensland presented more than 3700 signatures in a petition to State Parliament asking for the immediate introduction of a Cannabis for Medical Purposes Bill.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: No Cookies | The Courier-Mail
Author: Aleisha Pidgeon
Contact: editorial@qst.newsltd.com.au
Photo Credit: Josh Woning
Website: No Cookies | The Courier-Mail
