A Base Treatment Regimen For Cancer

[KingstonRabbi]

Hi Nixie.

Eager to hear how your oncologist reacts. Mine has been nominally supportive but changes the subject to avoid admitting that CCO is much more than just a palliative. My next scan is in January. It will mark 1 year with no visible tumors and almost 2 years since last chemo. Time for a flat out confrontation, albeit a polite one I hope.

 

[SweetSue]

Hi Sweet Sue - you must have your work cut out to maintain the level of input here that you do - never for one moment did I feel ignored or expect an instant reply; I really posted because I felt that I might seem to be the one doing the ignoring, having gotten so much useful information here and that I owed it to all of you who have helped me to keep you updated. (Well, that and a certain amount of personal gloating; so many plans!).

I have seen you mention callanetics, though I haven't found a whole thread. I will go off after this and look for it. Yes, from the little bit I have seen so far I would be really interested in trying it; is it something that is done here in Britain?

The study I saw re. exercise was an Australian one - they had chemo patients straight into the gym doing weight training etc. even though they felt wretched at first. BUT this helped the circulation and therefore chemo's kill rate (and I think it must have done more than that as the patients also reported less nausea, etc.) Presumably it would also help cannabis to take effect?

So not only has mainstream medicine, as received by the likes of me, here in Britain, ignored cannabis, it has also failed to advise of the benefits (PROVEN in various MEDICAL trials) of fasting, diet change and exercise tailored to having chemotherapy and combating cancer. I'm going to nip my oncologists ear tomorrow...

Here's a link to my thread Nixie. Callanetics - Meditation In Movement

I'm not sure how many instructors there are in the UK, the system is getting a total revamp by my friend Sandra Hanna, who'll be directing the world-wide training program. They've created a virtual studio where you can choose the videos. It's a very reasonable monthly subscription, and Sandra has a link to her own site where her students, who're scattered across the globe, can come together for support and sharing.

The main studio, the corporate face, can be found here. CLOSED | Join our new site at www.callanetics.tv

First month is a minimal charge. Sandra has a video on her list entitled Daily Stretch. This simple routine, based on movements created by Moshé Feldenkrais are indespensible for a healing ECS. If all you got out of a month with the site was learning to do these movements and continued to do them daily you'll recharge your body in surprising ways.

It's disturbing to me that nutritional studies aren't part of the training for a liscensed physican. They've been trained to prescribe pharmaceuticals, and stepping outside that comfort zone scares the sh*t out of them. Unfortunately, the path they chose for their own comfort had dangerous side effects for their patients.

Too many "doctors" are oblivious to the presence and importance of the ECS. How does one effectively treat illness by ignoring the master system?

 

[SweetSue]

Hi Nixie.

Eager to hear how your oncologist reacts. Mine has been nominally supportive but changes the subject to avoid admitting that CCO is much more than just a palliative. My next scan is in January. It will mark 1 year with no visible tumors and almost 2 years since last chemo. Time for a flat out confrontation, albeit a polite one I hope.

Be nice KR.

 

[Nixie]

Saw my oncologist and made my moan... She was actually really nice; incredibly helpful and immediately arranged for me to receive my surgical report etc. - though as it turns out I knew most of it. The only fly in the ointment is that paclitaxel doesn't seem to be working; my CA-125 count has risen. It may be just a time lag thing, so having 3 more weeks of it; then, if no joy, more chemo with a different drug; but I really feel I need that cannabis therapy!

I said that I felt I had needed to see her to have up-to-date information for a consultation with a clinic in California; that it had been highly recommended by several different people and specialised in the use of cannabis. She seemed really positive and clued up; she actually asked if it was to fight the cancer directly rather than just for pain relief. I said yes, and that it could support chemo as well as being a stand-alone treatment; then plucked up courage to say "Of course, as part of the full treatment I might need to take the illegal drug, not just CBD... I'm not sure if I should tell you about that, in case you are professionally obliged to report it..." She laughed - genuine and almost conspiratorial giggles, and was totally OK with it, and clearly understands more than she is professionally allowed to let on. So despite the bad news about the CA-125, it was a really positive meeting and I find that having been a bit paranoid, I am suddenly liking her a lot. That laugh did it. I did say I wouldn't be driving under the influence, or anything like that - but her reaction also suggests that she is aware that the highs can be controlled and that I am not going to run amok in the town centre, crazed by weed. At least, I don't think I am, am I?

Sweet Sue, your callanetics thread is awesome. I have to try it. I looked up callanetics here in Scotland and there is supposed to be a class just down the road! However I am not sure how active it is; I am trying to make contact but no luck so far. Think I shall take up your suggestion and treat myself to a month's video access just before Christmas, so I have a chance to immerse myself in it over the Christmas holiday.

Now off to unload potting compost from the car, under cover of darkness...

 

[SweetSue]

Saw my oncologist and made my moan... She was actually really nice; incredibly helpful and immediately arranged for me to receive my surgical report etc. - though as it turns out I knew most of it. The only fly in the ointment is that paclitaxel doesn't seem to be working; my CA-125 count has risen. It may be just a time lag thing, so having 3 more weeks of it; then, if no joy, more chemo with a different drug; but I really feel I need that cannabis therapy!

I said that I felt I had needed to see her to have up-to-date information for a consultation with a clinic in California; that it had been highly recommended by several different people and specialised in the use of cannabis. She seemed really positive and clued up; she actually asked if it was to fight the cancer directly rather than just for pain relief. I said yes, and that it could support chemo as well as being a stand-alone treatment; then plucked up courage to say "Of course, as part of the full treatment I might need to take the illegal drug, not just CBD... I'm not sure if I should tell you about that, in case you are professionally obliged to report it..." She laughed - genuine and almost conspiratorial giggles, and was totally OK with it, and clearly understands more than she is professionally allowed to let on. So despite the bad news about the CA-125, it was a really positive meeting and I find that having been a bit paranoid, I am suddenly liking her a lot. That laugh did it. I did say I wouldn't be driving under the influence, or anything like that - but her reaction also suggests that she is aware that the highs can be controlled and that I am not going to run amok in the town centre, crazed by weed. At least, I don't think I am, am I?

Sweet Sue, your callanetics thread is awesome. I have to try it. I looked up callanetics here in Scotland and there is supposed to be a class just down the road! However I am not sure how active it is; I am trying to make contact but no luck so far. Think I shall take up your suggestion and treat myself to a month's video access just before Christmas, so I have a chance to immerse myself in it over the Christmas holiday.

Now off to unload potting compost from the car, under cover of darkness...

This was heartwarming to read Nixie. The medical professionals are catching up. The labs are nothing more than your cannabinoid therapy baseline.

Enjoy exploring Callanetics. I recommend Sandra Hanna and her daughter-in-law Adelaide's videos over any of the others. By all means explore them all, but Sandra and Adelaide have an approach that'll benefit your healing ECS much better, IMHO. Feel free so ask me questions on the Callanetics thread anytime you're confused.

 

[Nixie]

I have to say that I had expected the same sort of body-swerve reaction that Kingston Rabbi had to contend with, so the response I was actually given was delightful.

 

[KingstonRabbi]

I have to say that I had expected the same sort of body-swerve reaction that Kingston Rabbi had to contend with, so the response I was actually given was delightful.

Very good to hear!

 

[nobby32]

Hi everyone - I'm in a bit of a pickle! I need some sage advice, please.

I have stage 4 Prostate Cancer with mets to my breast bone, ribs, and clavicles, also the base of my spine.

I have made CCO with:
Barney's Acapulco Gold, 24% THC, sativa dominant,
Barney's Critical Kush, 24% THC Indica
Barney's Critical Cure, 8% CBD.

I've mixed my A.G. and C.C. in a 2:1 ratio. Likewise my C.K. and C.C. in a 2:1 ratio.

I've made BioBombs at 5:1 with Liquid Lecithin and am using them in 1ml syringes (well, 900mg) as suppositories.

I'm popping 2 Apigenin capsules and 2 Gingko Biloba capsules before each dose.

I dose at 9am, 1pm, 5pm, 9pm, 1am. This gives me 835mg of CCO per day.

Been doing it for 4 weeks now.

There is no apparent difference to me between the sativa and indica doses.

Just before I started this year's treatment with CCO, I developed a hugely painful chest cough. My GP suggested a Nuclear Bone Scan and a chest x-ray and that's when the metastases were found, including a fracture in my breastbone (courtesy of my daughter's hard head from a running cuddle).

My PSA was 25 prior to these tests, and in a month my PSA has reached 98, despite ongoing Hormone therapy injections. These injections are becoming ineffective. I'm also on Cosudex tablets, which have lessened the chest pain.

My urologist suggests a course of chemo with Docetaxel but I'm very wary of taking this path.

I watched all of the vids at chrisbeatcancer.com and I've been on a strict vegan diet for months.

Should I carry on with my current dosing strategy and my vegan diet and have faith that this will control the cancer, or should I go for the conventional chemo way?

Or should I also try ingesting my CCO, like the Rick Simpson method?

I find I generate way too much saliva to successfully tack.

I have faith in CCO but maybe it's not going to work on me - this is my third year of dosing solely with suppositories. I did cure a squamous cell carcinoma on my back, but the cure took 6 weeks, not the few days I was expecting. I might be a real slow coach...

So, should I just keep dosing as I am, or change course?

As always, many thanks for any answers.

Keep well! Cheers, Nobby

 

[Nixie]

Hi Nobby

I read your post with interest as my situation sort of reflects yours - you are finding the cannabis treatment isn't working sufficiently well for you and are considering (?) chemo, but with some misgivings; I am on chemo (had it today, in fact) and am pretty sure it will not be effective in the long term, so am looking at cannabis as a curative agent in its own right but also as an aid to chemo while I continue to receive it.

I will say of chemo - yes, it is damaging, it has short term and potentially long term side effects (which CBDa oil seems to be amazingly good at controlling), but with modern protocols it is not as unpleasant to experience as it used to be, I think, and it does knock back cancer sufficiently to get you back in control, even though this is offset by the increased likelihood of the cancer's return. It buys you time. It has bought me the time I need to try cannabis; without it my cancer would have over-run my body by now.

What you have been offered doesn't seem too bad. The choice has to be yours, but if you think the cancer is winning, I personally would go for it, if only in the short term, seeing it as backing up a possibly revised cannabis strategy.

I'm too new to cannabis to give advice in that respect - I am very much a beginner - but if suppositories are not doing the trick would under the tongue be better? And (I am interested in this for my own sake) how do you measure the actual strength of your oils? I know you can buy test kits - do you use these? If so, do they work? If not, are you just doing the maths from what the plants ought to produce?
And is your 835mg the active ingredient or (as I read it) the whole oil of which only a percentage is active?

Hope you beat this, Nobby.

To put my views on chemo in perspective, it brought my CA 125 down to around the 200s, where it has stubbornly stuck; hence my dissatisfaction with this as a long-term treatment - BUT it brought it down from - wait for it - 4000, in only 4 sessions, one session a month.

I had carboplatin and paclitaxel, but my cancer is now definitely resistant to platinum and therefore to carboplatin, and possibly to paclitaxel too; we find out in 3 weeks. So the decline begins. But you could argue that the stuff has done it's job in getting me this far. Though you have been offered a different drug, the side effects look similar - these haven't been bad for me.

I'm sure someone more knowledgeable will be along to help soon. I would also say that I have been advised by 3 different people on here to contact Aunt Zelda's, where a doctor can give you a tailored protocol. I have just had my consultation today - $300 - but money well spent, I think.

Hope all goes well.

 

[nobby32]

Hi Nobby

I read your post with interest as my situation sort of reflects yours - you are finding the cannabis treatment isn't working sufficiently well for you and are considering (?) chemo, but with some misgivings; I am on chemo (had it today, in fact) and am pretty sure it will not be effective in the long term, so am looking at cannabis as a curative agent in its own right but also as an aid to chemo while I continue to receive it.

I will say of chemo - yes, it is damaging, it has short term and potentially long term side effects (which CBDa oil seems to be amazingly good at controlling), but with modern protocols it is not as unpleasant to experience as it used to be, I think, and it does knock back cancer sufficiently to get you back in control, even though this is offset by the increased likelihood of the cancer's return. It buys you time. It has bought me the time I need to try cannabis; without it my cancer would have over-run my body by now.

What you have been offered doesn't seem too bad. The choice has to be yours, but if you think the cancer is winning, I personally would go for it, if only in the short term, seeing it as backing up a possibly revised cannabis strategy.

I'm too new to cannabis to give advice in that respect - I am very much a beginner - but if suppositories are not doing the trick would under the tongue be better? And (I am interested in this for my own sake) how do you measure the actual strength of your oils? I know you can buy test kits - do you use these? If so, do they work? If not, are you just doing the maths from what the plants ought to produce?
And is your 835mg the active ingredient or (as I read it) the whole oil of which only a percentage is active?

Hope you beat this, Nobby.

To put my views on chemo in perspective, it brought my CA 125 down to around the 200s, where it has stubbornly stuck; hence my dissatisfaction with this as a long-term treatment - BUT it brought it down from - wait for it - 4000, in only 4 sessions, one session a month.

I had carboplatin and paclitaxel, but my cancer is now definitely resistant to platinum and therefore to carboplatin, and possibly to paclitaxel too; we find out in 3 weeks. So the decline begins. But you could argue that the stuff has done it's job in getting me this far. Though you have been offered a different drug, the side effects look similar - these haven't been bad for me.

I'm sure someone more knowledgeable will be along to help soon. I would also say that I have been advised by 3 different people on here to contact Aunt Zelda's, where a doctor can give you a tailored protocol. I have just had my consultation today - $300 - but money well spent, I think.

Hope all goes well.

Thanks Nixie, for your well considered reply. I'm fairly resistant to the thought of chemo, but your experience puts it in another light. I will also look at the Aunt Zelda site and see what's on offer.

Obviously my hope is that the CCO kicks in soon, as well as the diet, but at the moment it's not looking too positive.

Has anyone else had this sort of delay before the CCO has an effect?

And Nixie, what did you get for your $300? Advice, or a particular protocol?

Hoping maybe Kingston Rabbi can chip in here - he seems to have tamed his cancer and I'm looking to do the same!

I wish there was a way I could get my cannabis tested here in Australia, but no testing facilities exist here. The only way to test it is to take a tiny bit on the tongue and wait. Haven't tried the Cure on it's own , but the Acapulco and Kush really pack a punch, so I know there's THC there alright...

Cheers, Nobby.

 

[Nixie]

Hi Nobby

We actually got through quite a lot in an hour. I will have a chance to go back later for a follow-up as part of the package.

Yes, there was general advice, but also a protocol selected to suit my (in depth) medical details, dietary advice, and an undertaking to check out any drugs I am taking or know that I might be taking as part of my conventional treatment to look for possible clashes and to tweak the treatment to suit. I spoke to Dr Harry McIlroy but could instead have spoken to a nurse for $200 and I suspect it, too, would have been money well spent.

I will get this and any other relevant documents by email next week. I also asked which / products or brands of CBD / CBDa oil I should be looking at; I will have to see to the THC myself, but cannot find a safe place for huge stealth plantations, and since I can buy in imported CBD oil legally, it makes sense to do so. However CBD products seem to vary a lot, and it helps to have some guidance as to what to look for. I have settled on a couple of brands but it would be good to know if these are an appropriate choice.

I will go into the advice given re. protocol etc. tomorrow sometime - I asked if this was OK and they are fine with that; after all, the 420mag forum recommended them in the first place. Their protocol differs a bit from advice given here and I'd like to discuss the differences.

Testing - I know you can buy testing kits and I think you can get them in Australia - I intend getting one as I haven't the experience to judge strength - but I don't know how accurate they would be. Just want to be sure I don't under-dose.

 

[SweetSue]

Hi Nobby

We actually got through quite a lot in an hour. I will have a chance to go back later for a follow-up as part of the package.

Yes, there was general advice, but also a protocol selected to suit my (in depth) medical details, dietary advice, and an undertaking to check out any drugs I am taking or know that I might be taking as part of my conventional treatment to look for possible clashes and to tweak the treatment to suit. I spoke to Dr Harry McIlroy but could instead have spoken to a nurse for $200 and I suspect it, too, would have been money well spent.

I will get this and any other relevant documents by email next week. I also asked which / products or brands of CBD / CBDa oil I should be looking at; I will have to see to the THC myself, but cannot find a safe place for huge stealth plantations, and since I can buy in imported CBD oil legally, it makes sense to do so. However CBD products seem to vary a lot, and it helps to have some guidance as to what to look for. I have settled on a couple of brands but it would be good to know if these are an appropriate choice.

I will go into the advice given re. protocol etc. tomorrow sometime - I asked if this was OK and they are fine with that; after all, the 420mag forum recommended them in the first place. Their protocol differs a bit from advice given here and I'd like to discuss the differences.

Testing - I know you can buy testing kits and I think you can get them in Australia - I intend getting one as I haven't the experience to judge strength - but I don't know how accurate they would be. Just want to be sure I don't under-dose.

It's a lot to take in with such a short prep period Nixie. Appreciate the time to take a breath and let it all settle. I have the greatest respect for Mara and her team. You couldn't have made a better choice, in my opinion. Yes, we do have differences of opinion, but we respect that Mara's the one with numbers behind her protocols. Cannabis is the safest plant available, and there are many ways to skin this particular cat.

 

[SweetSue]

Nobby....... What a challenge this has been for you.

I'm working on instinct here, but a couple things jumped to the front of my brain.

* I remember hearing Mara once say to switch the dominant cannabinoids if it wasn't working. I'm not certain that's what's called for here, but it's the first thing that came to mind. If you make contact with them you might want to bring this up.

* I'd suggest a 4:1 or 5:1 ratio for the THC:CBD. For whatever reason, your body isn't responding to the current ratio. The first thing I'd be considering is raising the THC values. Get as much CBD in there as you can. THCa could be an alternative to CBD, since it turns out to do many of the same things at the cellular level when treating inflammation.

* Have you tried juicing? There's incredible nutritional value in juicing cannabis. Might be the missing piece.

* I'd consider oral doses, if it were me, either as an addition or alone, whichever you felt most comfortable with. You have nothing to lose by trying. I'd probably go with multiple doses, spreading it out as much as possible to level out euphoria.

Nobby, I know how difficult this is. Hang in there my friend. There's still so much to hope for. Your seeming resistance might be something simple we just haven't had the insight about yet, but I have great faith in this crew to stay open enough to pick up that inspiration when it comes through.

It's gonna come when we're laughing. Spend lots of time laughing with your daughter. Children are such good teachers of joy, and that's what we're holding onto here as we wait for whatever it is we need to find you the relief you seek. No one has desire as strong as yours. That says to me that the answer is right before us. We'll see it. I guarantee you we won't stop feeling for it.

 

[SweetSue]

Nixie, I'm a bit astounded at how timely your arrival here was. It catches me off guard still how beautifully the universe can orchestrate things when we step aside and trust.

Thank you for being here when Nobby needed it.

 

[Nixie]

Works the other way, too! Thanks for all being here when I needed it!

But I really like this forum for it's own sake. Would like to play a more active part here; it is a life-saver with a lovely attitude.

 

[KingstonRabbi]

Hi Nobby, Good to here from you again but wish it was better news.

If the suppositories alone aren't getting job done so far then it's time to hit it from different angles. I would add oral doses (or sloppy tacking) of 1:1 thc:cbd blend. I tolerated 200-300 mg doses of 1:1 CCO pretty well before I switched to suppositories using cajun's regimen. Pretty well meaning I could get around the house and talk to my family but not do anything productive, just so we're clear.

I didn't see you mention mangoes or green tea for demethylation of CB receptors. Keeping receptors clean is important for CCO to be most effective.

In one of cajun's last posts here he told us to add DMSO to regimen. He didn't give any explanation. He just said "Do it!" I don't know what dosage. I did find articles about in vivo study showing it does kill cancer cells but not how. Very much worth researching and trying. I think Dave Groomer was using it several months back.

A consult with Mara Gordon's team is never a bad idea.

Keeping blood oxygen levels high helps, especially if tumors are in areas with low blood flow. Moderate exercise or meditative breathing a couple times a day has been recommended as treatment for cancer. Key is to focus on steady slow full breaths.

And finally, I hate to admit this but combining chemo with cannabis may not be a bad idea. It may be that the chemo I had before my CCO treatment weakened the tumors so that CCO was more effective. Not saying it did, but it's possible. Again, lots of articles on studies showing that cannabis makes chemo more effective, so maybe the reverse is also true. Docetaxel is a nasty one, but it's nice to have a back up option.

 

[Nixie]

OK, my protocol as given... I shan't be able to do this for several weeks as no THC yet - but I shall do the best I can with CBD / CBDa. until that time.

I am supposed to work up to a 1:1 overall daily dose of CBD / THC, but with the CBD and THC rich oils taken separately; I didn't ask - must do so - but I think that is so the CBD doesn't take up the receptors that the THC should be attaching to - also, I was told take most of the THC at night, so you don't have difficulty in staying functional. The dose for me, at my age, with this particular cancer, would be 250mg daily, i.e. 125mg each of CBD and THC; this being:

10% of the THC first thing in the morning
50% of the CBD 3 hours later
50% of the CBD 3 hours later still
90%of the THC just before going to bed.

I am supposed to introduce the THC building up in increments of at 2 or 3 mg in the morning.until I get to 10mg, and 5mg at a time (so, 5,10,15, etc. mg) at night, until I get up to approx 110 / 115.

This slow introduction is because I am a new user, I think - they do ask about your past cannabis experience.

The CBD I can introduce more quickly; 15mg rising to 30, rising to 60 rising to 120 / 125 (but in fact I will already be using it anyway as I can source it at once).

I should keep at this dose for 3 months; not sure (but will ask) whether I will see anything happening before then; I would feel happier with an interim check.

This is intended to directly combat the cancer - having become accustomed to think of the old 1g a day dose as the thing to aim for, and given that this cancer is an absolute stinker which is not just going to lie down and die, this seems really low and I can see, I think, why stayalive has added an extra dose to her own Aunt Zelda protocol; if I find I can take that much THC I think I will do the same - I did ask if overdosing was OK, mainly because I don't think I will be able to be very accurate and I do not want to under dose and I was told it was fine and that it was more a matter of what my body could handle without the experience becoming unpleasant.

These doses were to be taken under the tongue; I asked about anal suppositories but they don't seem to believe that the oil can be taken up very effectively as it is oil rather than water - this was the first big difference. Nothing was said about adapting the oil with lecithin so that it could be more easily absorbed and the view seemed to be that if the THC wasn't giving you a hit, then that was because it wasn't getting into the system in the first place. I know this isn't the expert's belief on here so would be interested to know how this all works. They did say the oil was actually more easily absorbed through the vagina - which is great if you have one, of course - I did look that up after only to find that 90% is removed at first pass by the liver using this route.

I also asked about keeping the liver occupied to prevent it immediately processing the cannabis oils, as per the protocol on here, but they don't do that.

I was surprised that little was made of the different varieties or of the particular terpenes involved and maybe even implicated in fighting the cancer; I asked for guidance on this but was told just make sure you use a THC rich strain for the THC oil and choose CBD oil made from the bud rather than the stem. I thought Mara Gordon was very hot on selection of cultivars and on the value of different terpenes, so did expect more to be made of this; though to be fair the strains and varieties available in California will not be the same as those here.

The separation of THC and CBD seemed the important bit, plus the spacing of doses.

All in all really interesting and reassuring that the base protocol seems easily attainable. But I think I would also like to take on board a bit of what is done here - I have no idea if the science of absorption and occupying the liver is correct, but it seems to make sense.

I'm very tempted to quiz my oncologist on the science behind this, as she will have had to understand this stuff, or at least, the official view of it, in relation to chemotherapy. I wonder if I dare to trespass further on her professionalism? But she did seem interested...

 

[Nixie]

Also meant to say that he basically recommended a ketogenic diet and gave me a couple of book titles to consider. I am already trying to avoid sugar and bread.

 

[CCSC]

Hello everyone,

Not sure if this is the place to ask but I'm having trouble using the biombos capsules as suppositories? I'm making 5:1 dilution and the capsules are softening when store in the fridge. Is this normal?

Thanks

CCSC
HAPPY HOLIDAYS

 

[Nixie]

Have you got the right sort of capsules? I understand some can't take oil, and dissolve too soon? (Must have read that on here somewhere!) I don't know whether this really is the problem, mind you.